To know one life has breathed easier because you have lived. That is to have succeeded. - RW Emerson
Showing posts with label CRPS. Show all posts
Showing posts with label CRPS. Show all posts

Saturday, November 17, 2012

Never the answer?

I always here people say to or about a friend, a loved one or somebody that they don't even know that "Suicide is never the answer." (Before you get your spandex shorts in a knot, this post isn't going to be about me contemplating suicide...in fact it is not about me at all.) When people say things like this I find that it makes me almost irate, not because I think suicide is a good option, but because people who say that is not an answer to your problem clearly have no idea what that person is going through.

Today's post is about how a boy, living in my city, thought it was the only option. This boy's story can be read here and his name is Dom. Dom had chronic pain that started when he was 14, and it progressed to the point where it was so badly controlled, that by the time he was 18 he decided that his only option to end the pain was suicide. And now I bet you are thinking that: "No, there must have been a better option, there must have been treatments....there must have been something other than suicide that would ease his pain!" Well, my friends, as somebody who has chronic pain, you are eventually told that there is nothing more that can be done to help you, other than physical and emotional therapy. See, Dom was a teenager, and chronic pain is something that people, let alone other teenagers, can rarely comprehend. They don't understand why you can't just get out of bed and go to that party on Friday night or why you can't go shopping after school. Unless you have chronic pain, you cannot understand what it is like (even if you are a doctor, or a medical student or a personally know somebody with the disease).

Dom made the decision to end the pain because our medical and social system failed him. The only thing that kept me out of the depths of isolation and depression when it all first started for me was that I had teachers who had chronic pain, the fact I was at a boarding school where I was constantly surrounded by people making isolation impossible, I had a doctor who tried absolutely everything to help me and I had my bike. I was lucky to be where I was at the time...luck, pure luck, and without it, I don't know where I would be. Dom was completely imprisoned by pain, without doctors to fight for him or friends to pull him out of the depths of blinding pain. If you where him, would you be okay with having your mom spoon feed you for the rest of your life? Would you be okay with asking you sister to help you put on your socks at 18 years old? I wouldn't.

So don't judge somebody when they decide that taking their own life is the only solution, because for them it just might be. For me, I had decided to find my own solution, to spend my life in the lab trying to fix this problem. I still have hope, Dom didn't. I can tell you that even if you believe people who commit suicide go to hell (which I absolutely don't), hell might just be better than having every inch of your body be on fire all the time.

Just think about it for a moment, what would you honestly do in Dom's situation?


Wednesday, July 25, 2012

Gone? Never?

I don't think I have CRPS...at least I hope I don't, but my pain never really seems to go away. I had one month of relief the first month after the surgery...but while my nerve pain is less (but slowly creeping back) it has been replaced by this deep awful throbbing pain.

Does pain for people like us really ever go away, or is it just something that is going to be a part of my life until I die? I know nobody can answer this question, but I wish they could. I really wish they could.

On a happy note, this is my first post from my new Dell XPS 14! Yeah, I know what you are thinking...why didn't I  buy a Mac? Well, you see consumers of the world, Apple has one of the worst CSR policies on earth. Not too long ago there was a fire at one of their factories in China and people literally burned to death because there were bars on the windows and they couldn't get out. My concious won't let me buy an Apple product...they may be cool, but so is my new Dell...which also happen to come in enviro-friendly bamboo packaging. Way to go Dell!!

Peace like a river.

Thursday, January 5, 2012

Wisdom

I don't know why they call them wisdom teeth...I don't feel anymore or less wise now that they are gone from my mouth. But I can tell you that I have a large bruise on my face that is bigger than a toonie, and that I can't eat solid foods. However, so far I haven't had any nerve pain spread to my mouth or anything of that sort happen, so I think I am in the clear (fingers crossed, knock on wood).

I also have an ear ache...Here is to starting a new semester looking like I got in a bar fight!

Monday, January 2, 2012

Everybody, their mother and their brother's dog has a blog

Okay, so I used to be the only one out of my friends that had a blog, but now it seems every person I know is blogging! So I figured I should start again...and I guess the new is year is as good as time as any.But I have decided that while my room-mate Sarah's blog is pretty cool and my friend Maggie started an  awesome blog about her journey through the bible from Genesis to Revelations, I am going to do a semester in pictures starting from the first day of Classes on Jan. 9 to my last exam. I don't know what my blog will become after the semester ends, but I can't really think more than 4 months ahead anyway.


In some other news, I saw a plastic surgeon on Dec. 19 in Vancouver, and he said that instead of having CRPS (Chronic Regional Pain Syndrome) I have a Neuroma Syndrome instead. Which in a way was a relief for me because 1) it means that there is hope that this pain might end and 2) a Neuroma Syndrome better explains my symptoms than CRPS does. In April, after exam are finished, I will be heading down to Vancouver to get my leg sliced open once again, but this time it just might work. Apparently, if you crush the nerve that has a neuroma (intentionally causing injury) and then implanting into tissue such as bone or muscle (bone in my case as I requested it, my nerve being in my muscle doesn't really work out so great with me being a cyclist). It will be painful recovery I am sure, but short term pain long term gain right? Hopefully. This surgeon is the only one in Canada who does this surgery, so lets hope it works!

Oh and tomorrow I will be having all 4 of my wisdom teeth removed! I also won't be sedated, so it should be a fun next few days.

So keep checking this blog daily starting on Jan. 9. It is my new years resolution to try and and take a picture everyday for 4 months.